I know medical issues and issues of chronic pain do not get discussed a lot in blogs (at least the ones that I read). I hope that anyone who reads my story/journey can take comfort that there is (some) light at the end of the tunnel, and that they are not alone.
It’s been a little over 2 months now since I started taking Lyrica. I still have concerns about the amount I am taking and worry about it every day. (I’m now on 225/mg twice a day.) I still have some bad days, but the good tends to outweigh the bad now. (I am still experiencing brain fog, short term memory issues, severe dry mouth and drowsiness.) While this is great and I acknowledge it is, I still wish there was an actual diagnosis other than NDPH- New Daily Persistent Headache.
While I am not disputing the diagnosis (as the criteria fits as does my theory that the Optifast diet was a root cause of my headaches), I would still like a definitive diagnosis and cause of what had been a 7 year long headache.
Right now my day looks like this:
appx 5:30am: woken up by Molly to be fed, take first dose of Lyrica, pass back out
anywhere from 9am-12pm wake up for the day (I’m still working on getting up earlier; sadly the Lyrica makes me drowsy and I have to sleep after taking my morning dose. If I need to be somewhere early and need to use my brain I will take a lower dose after or not at all depending on the time.)
Guzzle coffee in hopes that I can work through the cobwebs. Mornings are hardest in terms of thinking clearly. I find that doing any kind of uni work at this time of day impossible.
12pm-2pm: Eat, drink more coffee, determine the plan of the day, start attempting work
2pm-5pm: Work, errands, gym or workout
5pm-7pm: Work, dinner, housework, etc
7pm-11pm: Make attempts on work; blog; telly; 10pm second Lyrica dose
11pm-12am: Get ready for bed, feed Molly, read for pleasure
12am-2am: Listen to the Red Sox, read for pleasure, sleep (earlier some nights than others)
All in all, my quality of life is improved and I am grateful of it. Having existed so long in such pain really took a lot out of me. It still does on bad days; it makes them feel so much worse than they are.
What comes next? I don’t know. I am very reluctant to up my dosage at this point. I’m going to be working on the main part of my thesis very soon and would like to be able to do it with minimal brain/memory issues. I’d also like to be able to get up earlier without feeling like I am in a fog and being exhausted.
I’m glad of the medication, I just wish it came with less side effects. I can see a time where I may need to lower my morning dose so I am able to think and work. Hopefully, this won’t cause me to have a resurgence in headaches, but I will make that decision when the time comes.