Headache update

It’s been 8 years having a headache pretty much constantly.  If this is news to you, I will give you a brief synopsis.

I’ve had a headache for 8 years.  I’ve seen 7 (I think now) neurologists, I’ve had a CT scan, MRI, 2 spinal taps (one failed), tests for pseudo tumor cerebri, and taken countless medications, some of which have caused serious issues like Topomax (ended up losing a job) and Lyrica (made me incredibly stupid and I still have issues with aphasia to date). (I’ve tried every OTC med, herbal supplements, yoga, massage, PT, oxygen, steroid infusions, food restrictions, etc.)

The last neurologist I saw told me I was fat (while true, not relevant to having a headache) and told me to lose weight (working on it, it’s not an overnight process, sorry) and when I explained I *was,* told me to work harder.  I filed a complaint.

My GP referred me to a pain clinic.  This was my 3rd appointment.  The doctor was very nice, but sadly I have pretty much exhausted all my options when it comes to medications and treatments.  (I’m assuming he means on the NHS?) He suggested a course of acupuncture and seemed to think it would happen rather quickly.  Yeah.  About that.  The first available appointment is December.  Yes, December.

So I’m pretty much resigned to a life of either pain or pain meds, at least at this point.  I’m pretty frustrated that there is nothing else that can be done, and that no doctors seem willing to investigate the actual cause of the never ending headache.  I understand the limited resources the NHS has, and I am totally ok with that, but I did see many doctors in the US as well, and I still got no answers.

It’s still frustrating after all these years, and it is even more frustrating to be told you are out of options.


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